價格:免費
更新日期:2019-02-27
檔案大小:37M
目前版本:1.19.0.0
版本需求:Android 2.3.3 以上版本
官方網站:http://www.cats-foundation.org
Email:dan@cats-foundation.org
聯絡地址:隱私權政策
In 2014 The Cure & Action for Tay-Sachs (CATS) Foundation was a winner of the Genzyme Patient Advocacy Leadership (PAL) Awards which has enabled the charity to develop and build the eAcademy for Tay-Sachs and Sandhoff Disease app.
The app has been designed for parents and caregivers of individuals with Tay-Sachs or Sandhoff disease and includes information on symptom management, practical advice for a carer and information on the diseases. Each section contains interviews with families who have been a carer for a child affected by Tay-Sachs or Sandhoff disease.